Healia Resources

Healia is the premier consumer health search engine for finding high quality and personalized health information on the Web. It serves as an independent, unbiased gateway to the highest quality health information resources.

• PubMed documents about heart disease
• Clinical trials about heart disease
• Web documents about heart disease
• Healia Communities Heart Disease Support Group

External Resources

Governmental and Nonprofit Organizations

• National Heart, Lung, and Blood Institute (NHLBI)
  The NHLBI is a branch of the U.S. federal government and their website has information about heart and lung diseases including links to federally funded research studies, heart healthy recipes, and educational campaigns.
  http://www.nhlbi.nih.gov/index.htm

  Links to some specific educational campaigns are below:

  • National Cholesterol Education Program
    http://www.nhlbi.nih.gov/about/ncep
  • National High Blood Pressure Education Program
    http://www.nhlbi.nih.gov/about/nhbpep/index.htm
  • Act in Time to Heart Attack Signs Campaign
    http://www.nhlbi.nih.gov/actintime/
  • The Heart Truth, National Awareness Campaign for Women about Heart Disease
    http://www.nhlbi.nih.gov/health/hearttruth/index.htm
• American Heart Association
  The AHA is a large nonprofit organization interested in educating people about cardiovascular disease, heart attack, and stroke. Their website has a large amount of information specific to heart disease including detailed heart attack warning signs, a heart encyclopedia, and information for parents, kids, and women. Se habla Espanol.
  http://www.americanheart.org/
• Go Red for Women
  Women united in the fight against heart disease
  http://www.goredforwomen.org/
• Framingham Heart Study
  Begun in 1948, the Framingham Heart Study is a large longitudinal study that follows residents of Framingham, Massachusetts to collect data on the causes of cardiovascular disease.
  http://www.framinghamheartstudy.org/
• WomenHeart - The National Coalition for Women with Heart Disease
  WomenHeart is a national patient advocacy organization serving the 8,000,000 American women living with heart disease. They provide support, information, and advocacy.
  www.womenheart.org
• Heart Healthy Women
  A non-profit organization with detailed information on heart disease in women.
  http://www.hearthealthywomen.org/
• American College of Cardiology
  The ACC is nonprofit organization whose members are healthcare professionals (doctors, nurses). Located in Washington D.C., the ACC advocates for quality cardiovascular care and influences health care policy.
  www.acc.org
• The Mended Hearts, Inc.
  A national nonprofit that offers support for heart surgery patients and provides ways for them and their families to connect with each other.
  www.mendedhearts.org
• FDA - Eating for a Healthy Heart
  This publication of the Food and Drug Administration outlines ways to eat a heart healthy diet.
  www.fda.gov/opacom/lowlit/hlyheart.html

Specific Heart Conditions

• Hypertrophic Cardiomyopathy Association
  A nonprofit organization dedicated to educating and fostering a community of people with hypertrophic cardiomyopathy (an enlarged heart.)
  www.hcma-heart.com
• Heart Failure Society of America
  Nonprofit organization offers educational modules that help patients understand heart failure.
  http://www.abouthf.org/
• The Long QT Syndrome: The Sudden Arrhythmia Death Syndromes Foundation (SADS)
  A nonprofit organization that wants to save the lives and support the families of children & young adults who are genetically predisposed to sudden death due to heart rhythm abnormalities.
  www.sads.org
• Heart Rhythm Society
  A nonprofit organization that bills itself as the primary information resource for cardiac professionals and for patients with cardiac arrhythmia.
  www.hrsonline.org/

Caregiver Resources

• Administration on Aging - National Family Caregiver Support Program
  Part of the U.S. Department of Health and Human Services, this program has lots of great information and support for those who are the primary caregivers for a family member with chronic disease.
  http://www.aoa.gov/prof/aoaprog/caregiver/caregiver.asp
• National Family Caregivers Association
  A nonprofit organization that educates, supports, and speaks up for those who care for loved ones with a chronic illness or disability or the frailties of old age.
  http://www.thefamilycaregiver.org/
• Caregiver Magazine, regional resources page
  This page of the caregiver magazine website allows you to search for caregiver support organizations in your local area.
  http://www.caregiver.com/regionalresources/index.htm
• National Caregivers Library
  A nice resource for caregivers with hundreds of articles, forms, checklists and links to caregiver resources. http://www.caregiverslibrary.org/

References

• American Heart Association
  http://www.americanheart.org
• Mayo Clinic
  http://www.mayoclinic.com
• National Heart, Lung, and Blood Institute
  http://www.nhlbi.nih.gov/
• Women’s Health.gov
  http://www.4women.gov/faq/hcpheartdis.htm
• Administration on Aging caregiver tip sheet
  http://www.aoa.gov/prof/aoaprog/caregiver/overview/CaregiverTipSheet.pdf
• NHLBI heart truth campaign
  http://www.hearttruth.gov/